⟡ “We Want Friends With Asthma.” ⟡
A mother explains why medical dismissal isn’t just clinical — it’s cultural exile.
Filed: 23 November 2024
Reference: SWANK/WCC/EMAIL-23
📎 Download PDF – 2024-11-23_SWANK_Email_Kirsty_DisabilityDeclaration_PediatricDismissal_SocialAlienation.pdf
An email to social work leads and council solicitors, unpacking not only the clinical denial her family faces, but the social cruelty and community alienation that results from chronic disbelief. It is at once a disability disclosure, a personal manifesto, and a demand for epistemic dignity.
I. What Happened
She emailed Kirsty Hornal — again — this time to name it directly:
– The medical staff said “I don’t believe you.”
– Her breathing collapsed while trying to explain.
– The cycle repeated — again — untreated, disbelieved, retraumatised.
She detailed the trauma of being gaslit since childhood.
She explained how her children — all with asthma — have faced the same invalidation.
She noted the absurdity of being blamed for protecting them.
And then she reframed it entirely:
“We want friends with asthma.”
Not to be pitied.
To be understood.
II. What the Email Establishes
That hospital staff are refusing care to a medically disabled parent based on disbelief
That social workers are copied into these events and remain inert
That a decade of institutional dismissal has resulted in psychological trauma and physical danger
That the parent is not asking for sympathy — but epistemic recognition and respect
That cultural, medical, and social erasure is a lived reality for her and her children
III. Why SWANK Filed It
Because asthma isn’t just a condition — it’s a culture.
Because the right to breathe without cross-examination is not optional.
Because disbelief kills slowly, socially, and in silence.
And because if a mother can write this clearly while suffocating,
what’s the State’s excuse?
IV. Violations Identified
Systemic Clinical Gaslighting by Hospital and Educational Institutions
Social Worker Complicity in Dismissal of Disability-Based Disclosures
Failure to Intervene in Known Discriminatory Medical Neglect
Emotional Abuse Through Patterned Disbelief
Cultural Isolation of Disabled Families Through State Procedures
V. SWANK’s Position
This was not just an email.
It was a eulogy for the idea that disability equals care.
She has asthma.
Her children have asthma.
And the world won’t believe them — even as they stop breathing.
She doesn’t want pity.
She wants peers.
And she deserves policy, not platitudes.
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