“Though the Witch knew the Deep Magic, there is a magic deeper still which she did not know. Her knowledge goes back only to the dawn of time. But if she could have looked a little further back… she would have known that when a willing victim who had committed no treachery was killed in a traitor’s stead, the Table would crack and Death itself would start working backward.” - Aslan, C.S. Lewis, The Lion, the Witch and the Wardrobe
Showing posts with label Invisible Illness Misunderstanding. Show all posts
Showing posts with label Invisible Illness Misunderstanding. Show all posts

When You Demand Speech from a Disabled Woman, You Are Not Acting in Good Faith.

 🖋 SWANK Dispatch | 12 January 2025

THIS ISN’T NON-COMPLIANCE. IT’S A BREATHLESS MEDICAL REALITY.

Filed From: Flat 22, 2 Periwinkle Gardens, London W2
Author: Polly Chromatic

Filed Under: Muscle Dysphonia, Eosinophilic Asthma, Vocal Rest Refusal, Invisible Illness Misunderstanding, SW Misconduct, Disregard for Medical Boundaries

Dear Glen (and your attending choir of spectators),

The following was sent to every institutional actor involved in this farce: Glen, Sarah, Eric, Kirsty, Rhiannon, Fiona, Rachel, Milena, Samira, Gideon, Dr Reid, the schools, the lawyers, the Home Office, and mental health services.

Why?
Because I’m tired of being told I’m “not engaging” when I am, in fact, trying to survive.

💬 WHAT I ACTUALLY SAID:

“I'm really struggling with my muscle dysphonia, eosinophilic asthma, and panic attacks.”
“Stressful situations—like court and hostile behaviour—make it almost impossible to communicate.”
“I need strict vocal rest.”
“These are invisible conditions. You don’t take them seriously.”

I spoke without speaking.
And still, no one listened.

🩺 DIAGNOSED, DOCUMENTED, IGNORED:

  • Muscle tension dysphonia

  • Eosinophilic asthma

  • Panic disorder

  • Post-exertional fatigue

  • Autonomic dysregulation

But in the language of social work?
If I don’t speak, I’m “refusing.”
If I do speak, I’m “resistant.”
If I get sick from the effort, I’m “choosing not to engage.”

🧠 REFRAME THIS:

This isn’t “communication breakdown.”
It’s communication abuse—when systems refuse to believe the limits of disabled people, then weaponise those limits as evidence against them.

I’ve stated my needs repeatedly.
Your refusal to accommodate them is not a misunderstanding.
It’s intentional negligence.

📎 FILE UNDER:

  • You are not confused.

  • You are creating confusion.

  • You are not traumatised.

  • You are causing trauma.

  • You are not caretakers.

  • You are captors.

Polly Chromatic
Ill. Documented. Unapologetic.
📍 Flat 22, 2 Periwinkle Gardens, London W2
🌐 www.swankarchive.com

Labels: snobby, Glen Peache, medical disregard, vocal rest boundary, asthma collapse, disability communication, panic disorder ignored, hidden illness, procedural cruelty, invisible conditions, hostile bureaucracy, court retaliation, silence as resistance

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